I haven’t been talking much lately because I’ve been trying to cope with my body telling me to screw off. That’s been quite a feat. I was supposed to get a secondary exam to decipher whether I had sjrogens or lupus. At this stage I just want to make it through the next few months. My work is slipping severely. Today I asked my boss for something she had clearly given me. I had no idea. The fatigue was so strong I litterally fell asleep sitting in my chair in the middle of an affidavit. This is despite the fact this weekend I pretended my legs were broken and I pretty much stayed in bed. My legs did feel broken. In fact the moment I stood up my feet felt like they had been holding an elephant and couldn’t. So I did. The minimal. Sunday I cleaned up a bit. Yesterday I called out sick because I was super naseous and just sick the night before. Truth is it was a combination of that and the fact I physically couldn’t get up because my bones felt like they were cracking like a wish bone.
Of course I don’t mention that. Because people don’t get it. They see you looking fab and the same outside and have no idea there is a war going on inside. One your usually losing. I was losing miserably. In fact I lost. So I stay quiet. What is the point of trying to explain to people when they don’t understand? It’s not malicious it’s just they don’t get it. The pain I’ve had in my hands the past 2 days is ridiculous. It runs from my knuckles down to my fingertips. From my wrists almost down. I haven’t lost my sense of humor or my ill manipulation skills if you think that’s holding me down. I’m just running at a slower pinky and the brain speed, that’s all. I proved it to myself today that I’ve still got it. So one win for a bunch of flighty moments.
What can I do? Life is short. At this point I just shrug my shoulders and call it a day.